STILL NO MAJOR ATTACK!

Still not back to the pre 1997 me - and may never be - but will be delighted if my Paleo/Gabriel method and Jonathan S Christie guided changes continue to keep me MS attack free.

The hot weather saps me of all strength, but I am steadily improving in many ways.

My adjusted approach is basically:
avoid all refined vegetables oils including margarine.

Reduce refined flour and refined sugar.

Eat organic eggs often.

Daily probiotics - I drink kefir cultured milk as I have the culture at home. I have also used the culture
to make pickled vegetables.

Less starchy or sugary carbohydrates, plenty of protein, and lots of natural fats, including saturated. Organic butter in the refridgerator, Macadamia and olive oil in the pantry. Bacon is back on the menu!

I do take some supplements as I really do not eat enough to get all of the vitamins and minerals I need.

I also listen to a meditation CD regularly.

One day we might get the additional rebate here in SA!

I have been veering towards this approach for a number of years and possibly that is why I haven't had a relapse for so long.
This is the first of a series of 7 prepared for the MS Society.

There is no money in industry funded LDN trials as naltrexone has been in use for years as a standard 50mg for drug addictions - and those with an autoimmune disease do best with a dose anywhere between 1/50th and 1/12 of that.

Which is why the MS Society itself has funded trials, and there are some private trials going for other autoimmune diseases.

Stubborness has worked for me so far - and dietary changes to a way of eating partway betwen the Paleo diet (recommended for msers) and the Gabriel Method, with some tweaking based on Jonathan Christie's Food For Vitality. Not perfect adherance, mind you.

No major attacks since early 2000's. But if another hit in spite of the changes I have made I would see GP and Neurologist until I had my LDN script!

Eye site is so important for brains feedback for balance, walking virtually all motor skills!!!

I find my eyes play up causes = worse MS symptoms!!!

Having worked in this area I would say it sounds like ON to me. Pain on movement and blurred vision are usually the tell tale signs. Sometimes blurred vision alone can be an episode of ON - it just depends on which area of the optic nerve is involved.
Some opthalmologists swear that a course of oral Prednisone is required. But many neurologist say that oral Pred can actually increase your chances of more attacks down the line. My own view is that, if the attack is mild (blurred vision and minor pain) I let it sort itself out. If however you loose sight or have areas of loss, then IV steroids followed by oral Pred is the way to go. Just my opinion though. Good luck

* This thread has been cross posted at the new ozms site here click me (or copy paste this if it doesn't link you) http://community.ozms.org/content/vic ... -2010-ozms-meetup-details *

Please go there if you wish to make comments, as they may not be seen here shortly :) and its easier for us organisers to answer questions.

Thats right its happening
we have a date, time and a venue all decided on, so we all get to see what we look like on the other side of a computer screen

This will all be Happening

Saturday the 20th of March 2010

at
Clocks at Flinder st Melbourne.
(Its pub, bistro TAB thats literally on Flinders st Station any closer it would be on the actual train tracks)
http://www.doxaclub.com.au/clocks.html
(heres a menu if you want to have an early look http://www.doxaclub.com.au/clocksFoodDrinkSnacks.pdf)

For a 1pm lunch.

Its an adults day out, so its suggestable to find someone to look after the children.
(But if you can't find someone, then its at a venu with a kids menu too they won't stare you down when you bring the kids with you :). Please keep in mind they may get a little bored thats all)

Partners, Carers, Parents and Best friends are welcome along if you desire.

We'll be organising RSVP's and parking suggeston/transport suggestion maps and all the rest soon enough, (don't want to make it all happen too far in advace, it might get a bit forgotten by then otherwise) so keep on checking back :)

again If you would like to make any comments etc please do so at this thread on the new forum only http://community.ozms.org/content/vic ... -2010-ozms-meetup-details

I'd also like to extend an extra special thanks to PennySue and Reeceo, for their help and support, they have both been excellent in organising the chat, responding to comments and making all the enquiries, so this wouldn't have been possible without them :)

and thankyou also to everyone for there input on this event its been the muse to make all this happen. :)

I look forward to seeing all your lovely faces there.
Cheers
Crystal

My daughter had a real problem with eyes last year.

Stuff optometrist recommended made it worse.

Eventually saw her ophthalmologist and it was some sort of chronic infection.

Used drops with zinc I think in them for some months.

Don't rule out an eye infection if you work in air conditioning.

Barb

Thanks Karen, I will phone tomorrow & hope to get into gp after work, or leave work early (with high temp I wont mind that) or see her tuesday morning.
Thanks for the advice about which eye dr too. You are so right that our eye sight is precious.

Hope you are feeling better.

They were shut but back this week. If you havent had a reply I would phone/email again as maybe it got sent on to someone who is not back yet.
If you phone the advertised number I think you go to the nsw office (the 1800) but you can also phone the Blackburn/Footscray direct.
Good start person at Blackburn is Louise, she is the coordinator I think, but is a really helpful lady.
I would give it another try being this time of year.