OzMS :: Forum

Re: Food for thought [by dizzylizzy]

Sat, 16 Jan 2010 15:34:33 +2000

Well-Being:: Food for thought
STILL NO MAJOR ATTACK!

Still not back to the pre 1997 me - and may never be - but will be delighted if my Paleo/Gabriel method and Jonathan S Christie guided changes continue to keep me MS attack free.

The hot weather saps me of all strength, but I am steadily improving in many ways.

My adjusted approach is basically:
avoid all refined vegetables oils including margarine.

Reduce refined flour and refined sugar.

Eat organic eggs often.

Daily probiotics - I drink kefir cultured milk as I have the culture at home. I have also used the culture
to make pickled vegetables.

Less starchy or sugary carbohydrates, plenty of protein, and lots of natural fats, including saturated. Organic butter in the refridgerator, Macadamia and olive oil in the pantry. Bacon is back on the menu!

I do take some supplements as I really do not eat enough to get all of the vitamins and minerals I need.

I also listen to a meditation CD regularly.

Re: summer woes [by dizzylizzy]

Sat, 16 Jan 2010 15:17:38 +2000

Well-Being:: summer woes
One day we might get the additional rebate here in SA!

You tube Clip - Paleo diet for MS [by dizzylizzy]

Sat, 16 Jan 2010 15:07:50 +2000

Videos:: You tube Clip - Paleo diet for MS

I have been veering towards this approach for a number of years and possibly that is why I haven't had a relapse for so long.
This is the first of a series of 7 prepared for the MS Society.

Re: Getting LDN in Brisbane/Queensland [by dizzylizzy]

Sat, 16 Jan 2010 14:53:54 +2000

Medications:: Getting LDN in Brisbane/Queensland
There is no money in industry funded LDN trials as naltrexone has been in use for years as a standard 50mg for drug addictions - and those with an autoimmune disease do best with a dose anywhere between 1/50th and 1/12 of that.

Which is why the MS Society itself has funded trials, and there are some private trials going for other autoimmune diseases.

Stubborness has worked for me so far - and dietary changes to a way of eating partway betwen the Paleo diet (recommended for msers) and the Gabriel Method, with some tweaking based on Jonathan Christie's Food For Vitality. Not perfect adherance, mind you.

No major attacks since early 2000's. But if another hit in spite of the changes I have made I would see GP and Neurologist until I had my LDN script!

Re: Optic neuritis? or worrying too much? [by ronnie]

Mon, 11 Jan 2010 23:57:26 +2000

Melbourne - VIC:: Optic neuritis? or worrying too much?
Eye site is so important for brains feedback for balance, walking virtually all motor skills!!!

I find my eyes play up causes = worse MS symptoms!!!

The Victorian 2010 OzMS Meetup (the details) [by MissCrytty]

Mon, 11 Jan 2010 11:34:55 +2000

Melbourne - VIC:: The Victorian 2010 OzMS Meetup (the details)
* This thread has been cross posted at the new ozms site here click me (or copy paste this if it doesn't link you) http://community.ozms.org/content/vic ... -2010-ozms-meetup-details *

Please go there if you wish to make comments, as they may not be seen here shortly :) and its easier for us organisers to answer questions.

Thats right its happening
we have a date, time and a venue all decided on, so we all get to see what we look like on the other side of a computer screen

This will all be Happening

Saturday the 20th of March 2010

at
Clocks at Flinder st Melbourne.
(Its pub, bistro TAB thats literally on Flinders st Station any closer it would be on the actual train tracks)
http://www.doxaclub.com.au/clocks.html
(heres a menu if you want to have an early look http://www.doxaclub.com.au/clocksFoodDrinkSnacks.pdf)

For a 1pm lunch.

Its an adults day out, so its suggestable to find someone to look after the children.
(But if you can't find someone, then its at a venu with a kids menu too they won't stare you down when you bring the kids with you :). Please keep in mind they may get a little bored thats all)

Partners, Carers, Parents and Best friends are welcome along if you desire.

We'll be organising RSVP's and parking suggeston/transport suggestion maps and all the rest soon enough, (don't want to make it all happen too far in advace, it might get a bit forgotten by then otherwise) so keep on checking back :)

again If you would like to make any comments etc please do so at this thread on the new forum only http://community.ozms.org/content/vic ... -2010-ozms-meetup-details

I'd also like to extend an extra special thanks to PennySue and Reeceo, for their help and support, they have both been excellent in organising the chat, responding to comments and making all the enquiries, so this wouldn't have been possible without them :)

and thankyou also to everyone for there input on this event its been the muse to make all this happen. :)

I look forward to seeing all your lovely faces there.
Cheers
Crystal

Re: Has the MS Society helped you??? [by pennysue]

Sun, 10 Jan 2010 10:48:43 +2000

General:: Has the MS Society helped you???
They were shut but back this week. If you havent had a reply I would phone/email again as maybe it got sent on to someone who is not back yet.
If you phone the advertised number I think you go to the nsw office (the 1800) but you can also phone the Blackburn/Footscray direct.
Good start person at Blackburn is Louise, she is the coordinator I think, but is a really helpful lady.
I would give it another try being this time of year.

Re: Epidemic of disorders in doctors :-) [by pennysue]

Sun, 10 Jan 2010 07:13:12 +2000

Tell us a funny:: Epidemic of disorders in doctors :-)
Great one. Says it all!

Re: Melbourne meet 2010 (the thought cloud) [by MissCrytty]

Sun, 10 Jan 2010 02:31:40 +2000

Melbourne - VIC:: Melbourne meet 2010 (the thought cloud)
Hi Everyone, Just want to make a reminder post that we are doing a chat night tommorrow night so we can gather more ideas of where you would like to have a meet up. So please come in with any suggestions you may have and open minds :)

PennySue, Reeceo and myself have been having a good look around, and we have some ideas in mind, but we need your input too. Keep in mind that this one is probably sit down a lunch kind of thing.

Things to be mindful of in advance when we do make suggestions.

Accessability: as pretty as a rooftop garden up 3 flights of stairs would be its probably not going to be the best kind of place for those with walkers, scooters, chairs and canes.
Also think about ease of access via any mode of transport, I know I'd probably have a bit of trouble getting to Wilsons Prom given I don't drive, I also think I'd have trouble trying to find Endeavour Hills when driving from Geelong.

Think about the budget: I'd love to do lunch at a the oyster bar or that fancy stone steakhouse sure, but the utitlity companies may not like me so much when I pay my bills late and I still get to look at an empty fridge for a week. These are tough economic times, and I think we need to be mindful that some of us only rely on our pension cheques to get by.

Children: (This has been a tricky one, as I don't have any, so I'm not good at relating too well) this is probably a day out for the grown ups, so where possible if you can leave the little ones with trusted family and friends its strongly encouraged. However that all said I know its not always easy, so if your in a situaution where finding sitters becomes achallenging, bring them along :).
This means when we do suggest places, perhaps we make sure that they do cater to having the little ones there in some way or another.

Future plans: I wanted to start a this thread for 2 reasons. Firstly because I'd love to meet everyone and secondly so there would be a brainstorm for ideas to be able to regulate several meet ups that overall suit everyone.
What has come out so far is the desire to have different kinds of meetups that cater for more ourselves specifically and then meetups we can bring the whole family along to.
So this is where if we want to start getting together family outings, everyone starts getting an idea of whos interested and where it should be and the best kind of dates to do these things.
But first up lets make sure we get a venue choice out of the way.
Its also a great oppotunity for us to get together as Victorians, so if your out there and can't make this meet up pop on in to the chat and say hi, tell us what will help you come to future meet ups, so whever organises future events can take that into consideration.

Once we have finalised our decisions of where it should be, we will create a brand new thread for it (and we'll probably cross post it onto the new forum too so no one gets too lost)

See all tommorrow night (Monday, 11, Jan, 2010) in the chat room at 8pm (if you can't make it ontime, we understand, and we'll probably wait around long enough to try an get as much otu of it as we can (within reason though))

cheers.
Crystal

Re: Got my CCSVI Ultrasound Referral [by MSER]

Fri, 08 Jan 2010 18:09:41 +2000

Alt-Treatments:: Got my CCSVI Ultrasound Referral
If you're going to follow through with this - Remember to get a referral from your GP or neuro first!

It's not OK to ring the doctor at the centre direct.